Living with a Jerk!!


Control. It’s something that we all like to have, but for me I have had to accept that having complete control is never going to happen because I am stuck living with a Jerk! I can’t lie and say that in the beginning I didn’t find it frustrating, or that it didn’t use to upset me. I lived my life trying to hide the jerk but the jerk would come out at the most inconvenient times and it would make me feel extremely down for the rest of the day.  I blamed myself for living with such a jerk in the first place and it became my obsession to try to get rid of the jerk, but no matter what I did or how hard I tried or who tried to help me, the jerk still hung around and there was nothing I could do about it. It took years, but I finally came to realize that I had no option but to accept the jerk and the fact that the jerk wasn’t going anywhere.  It didn’t happen overnight but I no longer let the jerk control my life or destroy my confidence.  I live my life the way I want, I’m happy despite the jerk and that’s why now I have decided to share my story.

Each day I get up and have pretty much the same routine. Like many other females, my routine involves putting on a bit of make up (to hide the tired eyes and random spot that has decided to appear overnight) but depending on the day sometimes the jerk doesn’t let me put my eyeliner on. I tell myself its okay, that it’s not a  necessity, and I move on. Another part of my morning routine that has become essential, involves getting my caffeine fix so I don’t have scrambled egg brain for the rest of the day. However, the jerk can be spontaneous and make me spill some by jolting my hand away from my mouth whenever I go to take a sip. I know the jerk sounds a little mean but I blame the lack of sleep.

I use public transport to get from A to B because the Jerk doesn’t let me get my licence. It’s not all bad though, at least I don’t have to worry about finding a car park, getting stuck in a traffic jam or being the designated driver. Admittedly, I have spent my fair share of time going in the wrong direction but I think I am finally beginning to nail it.

There have been many times in public when I have caught a few people’s eyes (not for a good reasons) and then been embarrassed by the jerk. I know that deep down the jerk’s intention wasn’t to make me look silly in public, but it certainly feels that way.

I put up with a lot from the jerk but overall its forced me to become a more patient person. However, that patience can be tested when the jerk tries to come between me and getting food in my belly! Sometimes I will be eating as normal and the jerk will decide to move my hand away just as the food is about to reach my mouth –  it is just cruel!  The jerk sometimes does the same thing with with my hand when I try to take a selfie after I’ve managed against all odds to get my make-up on straight, I’ve avoided burns from my curling iron and overall scrubbed up pretty good –  I think many of you will understand the frustration of having an almost perfect selfie ruined!

Now feel I should probably explain that “The Jerk” I have been referring to is not some horrible boyfriend or person in my life that is trying to sabotage me. The jerk is in fact a neurological movement disorder known as “dystonia” and I have had it my entire life. Believe it or not, dystonia is the third most common movement disorder, after Essential tremor and Parkinson’s disease, but it seems to have the least awareness. Dystonia comes in different forms, and for me it involves rapid jerks that can be triggered by nerves, fatigue and apparently anytime I know I have to be still. For others the symptoms can be much worse, involving muscles contracting, body parts twisting involuntarily causing pain, discomfort, exhaustion and in turn this all has a huge impact on every aspects of a person’s life. I can’t speak for everyone, but for me the biggest struggle I had to overcome was living with a condition that many people didn’t know about or understand; I was passed from neurologist to neurologist trying to seek answers. This is my reason for blogging. I hope that by sharing my stories about “living with a Jerk” I can raise awareness and let others know that they are not alone.

I Know that each person on this planet will at some point have their own battle or hurdle to face (we all have our own “jerks” to deal with). However, I believe if we can create an inclusive network we can help lighten the load or, at least, offer an ear to someone who is struggling. The power of just being there to listen someone who is suffering is greater than you can ever imagine. I know this because when I have had my lows, what helped guide me back was having people who listened, without judgement and believed in me. To all the beautiful people I have in my life I want to say a huge thank you , my life would not be the same without you all.


26 thoughts on “Living with a Jerk!!”

  1. Well done, Yasmin! I am sure that all of the members of the Australian Dystonia Support Group appreciate your efforts to raise awareness.


  2. Well done Yasmina. I admire the way you put your best foot forward even if sometimes you don’t mean to and take control of your life instead of letting the jerk control you. You know this is from someone who understands where you are coming from, having a rare auto immune condition myself that greatly impacts my life and sometimes has caused people to misjudge me.


  3. Thank you for starting this blog, and for your IG as well. I’ve been living with the same kind of jerk for more years than I honestly know. And although it still affects my confidence, I’ve recently began focusing on life and moving on, instead of this annoying jerk. Before this year, I had only talked to Doctors about dystonia, and never met anyone else with it. But after searching social media, I was surprised to find so many people with dystonia, and thankful to be able to talk to them.
    Anyways, like I was saying, thank you for your IG because the way you live your life (how you always look happy, and how you’re always out having fun), inspires someone like me to live life and not let this jerk drag me down. And thank you for this blog because I’m assuming you will be using this to share your experiences dealing with the jerk. Which i’m sure will help myself and others deal with their dystonia, as well as educate others who aren’t familiar with it. So I’m definitely looking forward to future posts. Btw I’m @intrvrtd_ on IG, in case you had questions about the jerk in my life or wanted to talk about yours. Have a great day!

    Liked by 1 person

    1. Thank you so much for taking the time to read and comment on my blog.
      I was also surprised to realise how many others were living with the same condition. I really hope that speaking to others is helping you and you can always message me with any questions or if you just want to chat 🙂
      I am also glad you enjoy my IG 🙂
      Gaining confidence and really accepting myself changed my life, I never thought I would be doing the things I am doing now a few years ago. I want to help others realise it’s possible and I know it can be tough to get there but with the right support you can get there !
      I will continue to blog about the various experiences I have had living with the condition (the embarrassing , the sad and the successes ) so I hope you enjoy it and it helps you 🙂

      Speak soon,
      Stay strong and be kind to yourself.


  4. Bravo Yas. I think it took a lot of courage to write your story you made me cry girl . That Jerk has made you a strong person . You have all my love and respect Yas. Je t embrasse très fort. Martine

    Liked by 1 person

  5. Spasms or not, you are an awesome writer! It may not lead to a cure but please don’t stop writing!

    I kinda loved the title. I would love for you to be a part of our community at…


  6. Bonjour à tous et chère Yasmina,
    D’abord je voudrais saluer ton courage et ton combat, face à la maladie,
    non seulement pour toi mais aussi pour les autres. Je soutiens ainsi sans
    réserve ta démarche ; tu sais que tu pourra trouver, comme toujours,
    mon total soutien. Tu as raison, aussi, sur un point : il faut se méfier de
    la presse et du journalisme. il se serve plus qu’il ne te serve et concernant
    tes problèmes de santé, il vaut mieux la solidarité avec les autres que de
    rester seule face à ses problèmes.
    Bon courage et à bientôt.
    Ton papa qui te félicite, encore une fois, et qui t’encourage.
    Mohand-Séghir AIT ABDELMALEK


  7. Thank you so much Yasmina! I too live with a jerk, although it was first diagnosed as a Parkinsonism. One of the things that made Parkinson’s doable, was the tremendous community of sufferers, caregivers, and advocates. I felt like I belonged to an exclusive group, all with a singular purpose. There was loads of information out there on the disease, and it came with big name advocates like Michael J Fox and Muhammad Ali. When I was re-diagnosed with Dystonia, it was really kind of a huge letdown. I didn’t know anything about the disorder, and there wasn’t much about it on the internet. On first look, I didn’t see any community at all. I have been a little bit lost. So today I loaded up my IG (@lifeofbrian365) and did a search for Dystonia. That is where I found you and, through you, communities like YooCan. I love your humor, your transparency, and your incredibly positive attitude about the daily struggles you face. I believe that I can once again belong to a community that knows how I feel. I thank you for that. Brian


Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s